DRAVET ITALIA ONLUS

La Dravet Italia ONLUS nasce con lintento di migliorare la qualità della vita dei bambini affetti da questa grave forma di epilessia la sindrome di Dravet.

OVERVIEW

This web page dravet-italia.org presently has an average traffic ranking of zero (the lower the better). We have probed zero pages inside the web page dravet-italia.org and found twenty-one websites linking to dravet-italia.org. There are three contacts and locations for dravet-italia.org to help you contact them. There are three public media accounts enjoyed by dravet-italia.org. This web page dravet-italia.org has been online for seven hundred and seven weeks, twenty-two days, twenty-one hours, and forty-eight minutes.
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3
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Online Since
Dec 2010

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DRAVET-ITALIA.ORG HISTORY

This web page dravet-italia.org was first filed on December 10, 2010. As of today, it is seven hundred and seven weeks, twenty-two days, twenty-one hours, and forty-eight minutes old.
REGISTERED
December
2010

MATURITY

13
YEARS
6
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22
DAYS

LINKS TO WEB PAGE

Diritti non Regali per i Malati Rari

DICONO DI NOI - RASSEGNA STAMPA. PETIZIONE EUROPEA MALATTIE RARE NON ANCORA RICONOSCIUTE. SEGNALAZIONI DI PATOLOGIE RARE NON RICONOSCIUTE 2012.

Dravet Syndrome Foundation Delegación en España

Sobre el síndrome de Dravet. Y las canalopatías epilépticas asociadas. El objetivo principal es avanzar en. El conocimiento de la causas de la. Enfermedad, mejorar su tratamiento y hallar. Eliminar, mitigar e incluso. Misión, visión y valores. QUÉ ES EL SÍNDROME DE DRAVET. Misión, valores y objetivos.

Home - Dravet Syndrome Foundation

Dash for Dravet on Turkey Day. Double Down for Dravet 2018. What is Dravet Syndrome? Click here to learn more about Dravet syndrome and childhood Epilepsy. Meet our superheroes who fight every day against Dravet! Find out why Dravet Syndrome Research is our hope for a cure.

Gruppo Famiglie Dravet

Cosa è la Sindrome di Dravet. Progetti Sostenuti - Dravet Care. Letteratura sulla sindrome di Dravet. WALK OF LIFE anno 2013 - TELETHON. Linee guida ORPHANET per la Sindrome di Dravet. Informazioni sul mondo della Disabilità. Le storie dei nostri FIGLI. ORPHANET - Pub Med - NORD. GRUPPO FAMIGLIE DRAVET Associazione ONLUS.

DSAS - Dravets Syndrome Association Sweden

Vi behöver din hjälp! Med din hjälp kan vi samla in pengar till framtida forskning, och för att sprida information och kunskap. Intresseförening för familjer i Sverige med barn eller. Unga vuxna som har diagnosen Dravets Syndrom. Vi är en intresseförening för familjer i Sverige med barn eller unga vuxna som har diagnosen Dravets syndrom eller liknande tillstånd. DSAS är riksomfattande, ideell, allmännyttig, partipolitiskt och religiöst obunden. Vad är Dravets Syndrom? .

WHAT DOES DRAVET-ITALIA.ORG LOOK LIKE?

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CONTACTS

Dravet Italia Onlus

Dravet Italia Onlus

via danzia, 3

Affi, VR, 37010

IT

Jody Fustini

Fustini Jody

via carducci, 6

Affi, VR, 37010

IT

REGISTER.IT S.p.a.

REGISTER.IT S.p.a.

piazza Annigoni 9/b

Firenze, FI, 50122

IT

DRAVET-ITALIA.ORG HOST

I caught that a single page on dravet-italia.org took six hundred and eighty-two milliseconds to load. Our crawlers could not observe a SSL certificate, so our crawlers consider dravet-italia.org not secure.
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0.682 seconds
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NOT SECURE
Internet Address
46.252.155.129

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ns1.register.it
ns2.register.it

SERVER OPERATING SYSTEM AND ENCODING

I caught that this domain is using the Apache operating system.

PAGE TITLE

DRAVET ITALIA ONLUS

DESCRIPTION

La Dravet Italia ONLUS nasce con lintento di migliorare la qualità della vita dei bambini affetti da questa grave forma di epilessia la sindrome di Dravet.

CONTENT

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VIEW SUBSEQUENT WEB PAGES

Dravet Syndrome UK

What is Dravet syndrome? What is Dravet syndrome? Living with Dravet syndrome. London to Paris bike ride 2018. What is Dravet syndrome? Fundraiser Gala Dinner 2018.

Dravet Syndrome Foundation Delegación en España

Sobre el síndrome de Dravet. Y las canalopatías epilépticas asociadas. El objetivo principal es avanzar en. El conocimiento de la causas de la. Enfermedad, mejorar su tratamiento y hallar. Eliminar, mitigar e incluso. Misión, visión y valores. QUÉ ES EL SÍNDROME DE DRAVET. Misión, valores y objetivos.

Home - Dravet Syndrome Foundation

Dash for Dravet on Turkey Day. Double Down for Dravet 2018. What is Dravet Syndrome? Click here to learn more about Dravet syndrome and childhood Epilepsy. Meet our superheroes who fight every day against Dravet! Find out why Dravet Syndrome Research is our hope for a cure.

Lauras Dravet syndrome journey

Laura is 10 years old and has Dravet syndrome. This is a rare neurological condition caused by a genetic mutation on the SCN1A gene. This has resulted in complex epilepsy, autism, ADHD, ataxia and severe learning difficulties. Laura is non verbal and walks unsteadily but is a very happy and mischievous girl who loves everybody and enjoys life. Tuesday, 5 October 2010. Sunday, 5 September 2010. Laura had a great summer off school! Sunday, 16 May 2010.